We are often asked to explain Bertie’s condition. This is tough because it is complicated. However, as it is Rare Disease Day, here goes: One of Bertie’s genes is faulty, specifically a collagen VI gene. In his case he didn’t inherit a faulty gene, although you can. It just went askew and created an error […]
Update: the winner will be announced shortly. Just waiting to hear back from our judges. xx Update!!! This competition has now closed. The entries have been sent to the Seas of Mirth and we will announce the winner very soon 🙂 Bertie’s Buccaneers are fighting to fund a cure for Ullrich muscular dystrophy. Our wonderful […]
Update: They did it! What an amazing way to launch Team Bertie. Thank you, Amanda, Stuart, Jack and Millie. xx Bertie’s Auntie Amanda surprised herself when she decided that flinging herself down the longest zipwire in Europe (and the fastest in the World) was a great idea for getting Team Bertie off […]