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Going the extra mile

https://www.justgiving.com/fundraising/russell-wright1 Russ has now raised ¬£2036! Here is Bertie’s friend Freddie with his dad, Russell Wright. Today, Russ is taking on the legendary Ironman challenge to help fund a cure for Bertie (sponsor link above). He is undertaking a 2.4miles in open water at Pennington Flash; a 112 mile cycle and then a 26.2 mile […]

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Nordic mile

Bertie’s Grandma, Joan Parkinson, is busy organising our first Move a Mile for Muscles event to support research into a cure for muscular dystrophy. Joan and friends, including Isabel¬†(pictured), will be nordic walking a mile of beautiful St.Annes Beach in Lancashire this spring (May 4th).   You can join an existing Move a Mile event […]

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Funding vital research

Bertie’s Buccaneers is a fundraising community and in particular a Family Fund for Muscular Dystrophy UK. Family Funds like ours together raise vital funds for groundbreaking research into Bertie’s condition. We are currently awaiting the final report on Prof. Muntoni’s recent project. Prof. Muntoni is now one of Bertie’s consultants at Great Ormond Street. Ullrich […]

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Where your money goes!

Facilitating clinical trials for collagen VI-related conditions Here is just one of the vital projects into Bertie’s condition. It is being undertaken by Prof. Volker Straub at Newcastle (who diagnosed Bertie in 2014). This research is funded by the Family Funds for Muscular Dystrophy UK (MDUK). We are very proud to be making a difference. […]

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