We are often asked to explain Bertie’s condition. This is tough because it is complicated. However, as it is Rare Disease Day, here goes: One of Bertie’s genes is faulty, specifically a collagen VI gene. In his case he didn’t inherit a faulty gene, although you can. It just went askew and created an error […]
We do everything we can to give Bertie a great childhood that is full of adventure but there is no avoiding that it is getting MUCH harder in his regular NHS chair as he grows heavier. The Ottobock is a fantastic chair and we love it but it is heavy and like most regular wheelchairs […]
Update!!! We have done it! We have raised enough not just for the basic trike but for the full trailer trike. We are so grateful to you all. You’ve all made a little boy very happy! xxx Dear all, Following so many supporting comments and offers of help over the weekend, […]